My son was so excited about his freshman year. I remember him trying on about 20 different outfits in preparation for his first day. In addition to that, he is an athlete. He was a slot receiver and played strong safety-starting positions. Soon he would find out that he would never play football again.
He went to school for the first four days, played his first high school football game then came home to get ready and visit with his grandparents from out of state. He had a great weekend overall.
Finally it was Sunday and towards the evening, he begin to feel sick. Thankfully Labor Day was around the corner so there was no school on Monday- perfect recover day, right?
When Monday came, my son’s symptoms begin to worsen. My husband started monitoring his fever and by around 800pm we decided to take him to the emergency room. There we were told our son had a virus and it needed to run its course.
Tuesday came, then Wednesday. By Wednesday we decided to take him to his pediatrician where he was diagnosed with strep throat. I remember thinking “whew, so glad we know what’s going on!”
As Thursday approached, our son begin to feel a little bit better. I started feeling some relief and figured the antibiotics given to him were working… Then Friday came around and he felt worse. I decided to call the pediatrician and was told the antibiotics needed more time to take affect, but not to worry.
Saturday was here… It was 300am and as I sat up nursing my then two month old baby, I heard the most awful, bone chilling noise… It was coming from our son’s room.
My husband jumped up and ran to check on our son who became scared and was unable to recognize my husband. Shortly after, he moved to the living room and rolled into fetal position on the couch. My husband yelled for me. I ran to the living room and remember feeling so scared. Our son then jumped up and begin stepping away from me. He was trying to speak but the only word I could make out was “scared.”
I kept telling him “it’s mommy, son it’s mommy and it’s ok.” Finally he crawled back into fetal position on the couch while holding my hand saying “momma, mom, mom.”
My husband immediately called 911. The paramedics arrived and did an evaluation. We were told our son may be dehydrated and to go ahead and take him to the emergency room. So I went ahead and did that. My husband stayed behind with our baby and daughter so I called my parents to meet me at the hospital.
Around 645am, I left to come home and nurse. My father called me by 730am… I still remember his exact words “Look mija, I’m not going to say much over the phone but you need to get back here pretty quick. Your brother is already on his way to stay with the baby and cici (our daughter) and Drew (my husband) is on his way.”
I remember feeling like I couldn’t breath at that moment. I had to tell myself to stay calm. I begin crying… I was so afraid of what could be happening.
My husband and I walked into the emergency room where our son was. His room was empty and my parents approached us in tears. My husband and I were told that Rueben (our son) had a very severe seizure and he was wheeled off for an MRI and CAT scan. My parents thought he was dying… I sat down, took a deep breath and begin praying… How could our perfectly healthy 14 year old (at that time) son be having seizures.
When our son was brought back into the room, he was not himself. He was in a deep sleep and running a high fever. The emergency room doctor placed him on about three antibiotics and informed us he would be moved to a hospital that specializes in neurology. They didn’t know what was going on yet but had to make sure they treat him for everything that it could be.
We arrived at the other hospital by ambulance and were placed in their pediatric intensive care unit and in a private room. At that point our son begin having convulsive seizures almost every hour. We were pulled out of the room. A neurologist came to talk to us, an intensivest came to talk to us and a doctor from the center for infectious disease came to talk to us.
As they asked us questions, we could barely answer. We were watching our son who was in pain have seizure after seizure knowing there was absolutely nothing we could do. We were helpless.
What the hell was going on? Where we losing our son? Why was this happening? I just wanted to hold him and tell him it would all be ok.
My son stayed in the pediatric intensive care unit for 11 days. During that time he was diagnosed with viral encephalitis.
Encephalitis is acute inflammation (swelling up) of the brain resulting either from a viral infection or when the body’s own immune system mistakenly attacks brain tissue. The most common cause is a viral infection. In medicine acute means it comes on abruptly; of abrupt onset, develops rapidly, and usually requires urgent care. Encephalitis occurs 1 in every 1,000 cases of measles.
According to the CDC (Centers for Disease Control and Prevention), USA, encephalitis occurs in approximately 0.5 in every 1000,000 individuals, most of them children, elderly people and individuals with weakened immune systems. So it is very rare. The NHS (National Health Service)NHS, UK places the figure at 1.5 cases per 100,000 people. Health authorities suspect incidence is higher than official figures because many cases go unreported when symptoms are mild. Encephalitis generally begins with fever and headache but the symptoms rapidly worsen and can include seizures, confusion, hallucinations, drowsiness and comas.
While the virus almost claimed our son’s life twice, Our son was blessed. He did not fall into a coma and the seizure prevention medication he took helped.
It was the most scariest feeling, things I have ever gone through. Watching your child suffer from pain that can’t be controlled is awful. It’s heartbreaking. I couldn’t bare the thought of losing him.
He is now 15 years old, with great physical therapy, supportive friends and family, seizure prevention medicine and God… Our son is expected to make a full recovery. Football is something he can never play again, but he won’t let that get him down. Don’t get me wrong… He takes nine seizure prevention pills a day and the journey is far from being over but the outcome is looking very promising. It’s been almost a year now and everyday I look at him I just know God has great plans for him, he is a walking miracle.
Our son is working with family to get his story out to help raise awareness and motivate others. He wants everyone out there to know that no matter what the obstacle may be, you too can overcome.
What I want everyone to remember is this- Life is too beautiful to dwell on negative. As my son’s story proves, life can be taken away at anytime. It is a gift, not a burden. Love each other, forgive each other and enjoy every second of life because nobody knows what tomorrow will bring.